A place for endometriosis survivors & supporters, and all that goes with it.


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#TBT to the first time I published my #endostory

I recently had to clean out my desk and pack up 10 years of memories and collectibles (and, let’s be honest, papers and condiments and dusty old fortunes). Among my discoveries: the long-lost copies of H Magazine from 2009, in which I lay out my excruciating and embarrassing first emergency room visit for extreme pelvic pain and heavy bleeding, describe some of the more graphic details of life with endometriosis for all my coworkers to read, and required our senior Graphics Editor to make a graphic of what endometriosis and adhesions look like. (Sorry not sorry, Steve.)

The story took a big edit and you can’t even find it online any more, since the magazine is no longer in print, but I was still happy — and maybe a little strangely nostalgic — to find these copies and to know they haven’t been totally lost and forgotten. I’d love to take another crack at this and rewrite this article, to update the facts and improve the prose. Maybe now that my schedule has “opened up,” as they say, I’ll have both the time and resolve to do so.

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Happy Endo March all around the world!

Wishing everybody marching for endometriosis awareness a happy, productive, and pain-free weekend! I love seeing the photos from all around the world as I’m perched on my spot on the couch, heating pad on high and little dog laying bored next to me. Keep ’em coming — wish I was with you! (All of you — I attended the original Washington, D.C., march, and who wouldn’t want to march in Scotland or France or South Africa or Canada!)

We’d love to see your favorite photos from your local endo march. Post them to the new official Endo Sucks! Facebook page, and you could see them featured on the Endo Sucks! social media! Be sure to include where you’re from and who you’re marching for.

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It’s Facebook official.

Took us long enough, right?

Help Endo Sucks! grow this month by liking and sharing our official Facebook page, and inviting your friends to really, really like us, too!

Kat+Lia


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This is what you call “not helping your case”

Some interesting screengrabs of Tweets from Drew Pinsky, his wife Susan, and the ditch they are digging themselves into more and more today with terrible handling of Pinsky’s misguided (at best) comments about endometriosis and IC during the Loveline show on Thursday night.

Apparently the situation at hand may be discussed on his show on Monday, April 28. We shall see. Even if it is, Susan Pinsky makes it sound like we’re in for another shit sandwich.

To follow what’s going on, you don’t even need to have a Twitter account. Mine is twitter.com/endosucks (or @endosucks if you do have an account). Drew Pinsky is @drdrew, @loveline and @drdrewHLN (yes, he’s on CNN too), though he does also have others (like for the podcast). Susan Pinsky is @firstladyoflove.

If you want to respond, tweet at these accounts, and/or use the trending term #educatedrdrew.

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And then this treasure happened. Why would Dr. Drew love something sent out by a dietician who specifically deals with IC, a disease he believes has no genuine pathology? HMMMM. My response is below; for some reason, it isn’t showing up on his feed any more.

Patriarchy like whoa.

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