Endometriosis is a sneaky disease. Some women may be riddled with it but feel little pain, while others have a few implants and suffer daily. Its cause is unknown, its cure is undiscovered and its pain immeasurable. That is why I describe us as survivors: Every day we lose in bed, wear a heating pad on the job, take another codeine, try a new diet or birth control and live with infertility, but still work, pay our bills, take care of our families and strive for a normal life is a day of survival.
Endometriosis also is amazingly underdiagnosed and misdiagnosed. The only way to diagnose endometriosis is via laparoscopy, yet many women I have met have been “diagnosed” based on a pelvic exam. Others have never even heard of the disease yet live with the symptoms for years. Not happy to be on its own, endo also brings with it heavy cycles, irritable bowel syndrome, pain and swelling in the abdomen, and often is connected to a higher likelihood of hernias and migraines.
About Endo Sucks!:
I founded Endo Sucks! because, after so many years of telling my story, recounting my dozens and dozens of doctor’s visits and surgeries gone wrong, explaining the pain, exhaustion and pain med stupors, I realized the one thing I always ended up saying to the “I’m sorry” ‘s was “Well, endo sucks!” An understatement for sure, but true nonetheless.
I am 30 and work in journalism and as a labor & birth doula. With more than six years of professional medical experience behind me and 16 years of battling my body, I know what it means to have endometriosis, adenomyosis, interstitial cystitis and polycystic ovarian syndrome (PCOS) from both sides of the table. I will be drawing from other networks and medical sources as we go along.
I am an ongoing endometriosis, adenomyosis, IC and PCOS survivor. Endo Sucks! seeks to provide a non-judgemental network for fellow survivors of all ages and their loved ones in an effort to understand and overcome this daily disease.
Contact Endo Sucks!:
If you have questions, concerns, kudos or comments, please e-mail me at firstname.lastname@example.org. Any questions are welcome and I will be happy to answer them to further the awareness and understanding of endometriosis.