This is a statement I’ve heard before but was reiterated to me by my cousin Nessa. Standing in her kitchen in sweet home Chicago, I thought I’d get away from some of the stresses of endo sucking, but not as much. On Thursday, I arranged a hurried meeting with my PCOS doc and surgeon (one and the same). He did a pelvic check, ultrasound and chatted with me, with the same result: He won’t do another laparoscopy until I see a urogynecologist. His explanation: Since a) I “only” get up to 6 months of relief with a lap, and b) he can’t push one location that’s the trigger of all my pain, then my generalized pain that goes into my legs and knees and back, makes me sick and the multiple points of pain that caused me to swear at him and pull back when he pushed them leads him to believe it could be a pelvic floor issue. So he wants me to come back once I’ve had that evaluated.
… Wait, what?
If it was a pelvic floor issue, wouldn’t I have other symptoms or issues … namely, endo that doesn’t regrow between surgeries? My coworker with endo is heading to her third lap too, and has done the physical therapy being recommended to me. She shook her head sadly when I told her what happened. “Doesn’t work,” she said simply.
He is really pissing me off. I went in looking for help and received a doctor who changed his tune about my previous surgeon, i.e. “if there was endo there, he got it out.” A 100% reversal of his opinion from a few months ago.
So what to do now? If I push for the lap, I become “that girl.” If I don’t, I continue to be wracked with the uncertainty that causes me to not relax. Ever.
My cousin’s advice: “Medicine is a service industry. You know what you want and what you need,” she said. “If he won’t, find someone who will.”
The end, I suppose.