A place for endometriosis survivors & supporters, and all that goes with it.


Leave a comment

My personal #DeepBlueChallenge

I’m an Endosister on CD1. And things have been rough — already threw up today, which is not entirely usual for me. Had to move an appointment to tomorrow, and there is so much blood … I’m exhausted. My lucky break today is that my days off had to be broken up this week so all I have to do today is care for my health. 

I also am an essential oil using & loving skeptic — I joined doTerra because I loved their headache oil blend and their PMS oil blend works so well for me, but I’m one of those people who generally has to experience it to believe it. So I can’t think of a better time for my personal Deep Blue Challenge. This is a new supplement with anti-inflammatory ingredients, including frankincense, curcumin from turmeric (which we are all told to use to reduce inflammation!), ginger & more. 

  

Several women in my group have Endometriosis and have been raving about this as a way to reduce their pain. I became a member of doTerra because their products work for me (and hey baby, those wholesale discounts are sexy!), and I will always be honest with you that this is a group in which I’m enrolled. With ingredients like these, I definitely have nothing to lose and everything to gain. I’ll keep you all posted on my results! You can follow my oil adventures on mydoterra.com/oilsbychanel, which has links to my Pinterest and  Twitter as well. I’ll try to keep up on this blog as well.

Will I give up my codeine? Not if I don’t have to, kids! 🙅🙅🙅 But there’s no reason we can’t combine natural methods with our pain meds! I’ve tried all the chemicals and I can’t say my life is worse for pharmacology. But I will try anything and everything.

Featured Image -- 1147


Leave a comment

5 things you don’t know about the wage gap

endosucks:

The gap exists, why we mark #EqualPayDay on Tuesday and more to know.

Originally posted on Fortune:

Tuesday’s annual Equal Pay Day highlights the fact that women working full-time earned 78 cents for every dollar men took home in 2013–a whopping one cent improvement over the previous year, according to the U.S. Census Bureau. That’s a long way from the 60 cents on the dollar women collected in 1960, but it’s still shamefully far from equal pay for equal work.

While you probably know the wage gap exits, these five facts about the gender pay gap may come as a surprise.

1. Millennial women think the pay gap is a myth.

More than half of the 10,000 millennial women surveyed by Levo, the New York City-based career platform, said they didn’t feel the wage gap applied to them. That’s both good and bad news. On one hand, it suggests that younger women believe that they’re earning a fair salary. And indeed, women under 35 face a smaller…

View original 460 more words

20140611-125601-46561311.jpg


Leave a comment

Pro tip: What not to drink for your ultrasound prep

So I chugged this 33.8 fl oz bottle of caffeinated water (my beloved Water Joe) to be ready and “full” for ultrasound. Wait an hour past my appointment. First thing the tech says when I get called back: “Use the bathroom and empty your bladder. The internal pictures were much better last time so I’m just going to do those.”

20140611-123021-45021413.jpg

All that delightful Water Joe for nothing, on an empty stomach. That’s 120mg of caffeine, equal to two cups of coffee, or two espresso shots. It doesn’t sound *so* bad, but my thumb is shaking as I tap out this post. I can feel my eyes are HUGE, almost pie-eyed, and there’s an odd pressure in my head. Oddly, I do not feel any more awake. In fact, I’ve been yawning through my heart flutters.

I do still have to pee.

DEAR GOD I’VE MADE A TERRIBLE MISTAKE

Live and learn … At least the good news today is that my 3.6cm cyst is now 2.5, so no cyst removal for me!


3 Comments

Guilt over not participating in my own life (or at least Star Wars Weekend)

Can I just vent for a minute?

I am really getting down and sick of how unpredictable and uncontrolled my endo and adeno pain is. I am trying to live any sort of social life but end up just going to work, surviving, going home to sleep, and repeat. And I’m getting upset over ridiculous things. Tomorrow, for example, I have been dying to go to Star Wars Weekend at Disney in Orlando, especially since this is the last weekend of the year and Mark Hamill and Billy Dee Williams will be there. I have been talking it up and getting excited. Today, I wake up and I am beyond thrashed. Well, I say wake up, but I really mean “have several short naps from 3 a.m. to 2 p.m. and finally pour myself out of bed and stumble around the house like a zombie.” Hell, I’m still in pajamas right now! I haven’t even taken anything for pain, even though I’d like to! I am trying to work myself up to go out to have dinner at 7, I can hardly fathom getting on the road at 7 a.m. to spend the day in the heat in Orlando and drive back that night. And what about my pain management? I am back to rationing my meds each day, and the codeine I’m sorry to say is not really effective. It’s a difficult admission. So I have people here and in Orlando that know I *might* come, but I might not, and it affects not just me because there’s getting the dog cared for, and making sure I have clothes I can actually wear through the day, and staying comfortable. I just don’t know. I’m exhausted at the very thought. Another opportunity for fun, probably down the drain. Another year of planning to go, gone.

The pose on this statue by Rodin just cries Shame to me. Image found via Google Creative Commons.

Statue by Rodin, image found via Google Creative Commons.

I already had to decline the wedding invitation of a friend I’ve known for 20 years because I’d be in Chicagoland alone, and with as weird as my pain has been, I can’t risk being stuck in a hotel room or banquet hall and not able to get around, or not be able to wear pants, or swell up to pregnancy size. Or worse, being in total incoherent pain and not able to care for myself, or get back to my hotel, or having to explain myself to someone there, spending the money and not being able to go or drive safely, and and and … I just can’t risk it.

I know I get stuck in this cycle of making decisions based in a place of fear. But I feel like I’ve done a hell of a lot pushing through my pain, especially college and beyond. Now I feel like it is catching up to me. And I feel such extreme guilt over not being able to do participate in my own life. It can’t be healthy.

These aren’t the first events I’ve had to sacrifice in the name of endometriosis. I guess they won’t be the last. And that is infuriatingly sad.

I wish very much that I could just make decisions and go and do and not have a million “ifs” and items to tick off the list. Isn’t that what normal people do? They get to go and do things and not have their pain sitting on their shoulder (or anywhere else, for that matter), guiding their life experience? I can’t be the only one who feels like this.

Maybe I’m finally getting to a point of making that Very Difficult Decision.


Leave a comment

A new look: I know, it’s about time

Let me know what you think of the new look of the Endo Sucks! blog in the comments below!

Hopefully the change in theme will eliminate some of the problems people had with image sizes, but if you have any problems, please be sure to comment on the post in question.

Thanks for sticking with us since 2008 and our old format — which, I have found, isn’t even a theme offered by WordPress any more. Talk about vintage.

x – Chanel


Leave a comment

Need another reason to stand up and #educateDrDrew ?

Oh, if you insist.

I have seen this several places tonight. Here is an entry from Grass Fed Girl – her report, and her educational story.

Click the photo or this web address: http://www.grassfedgirl.com/dr-drew-hassles-jennifer-esposito-about-her-celiac-disease/

20140428-005837.jpg


2 Comments

This is what you call “not helping your case”

Some interesting screengrabs of Tweets from Drew Pinsky, his wife Susan, and the ditch they are digging themselves into more and more today with terrible handling of Pinsky’s misguided (at best) comments about endometriosis and IC during the Loveline show on Thursday night.

Apparently the situation at hand may be discussed on his show on Monday, April 28. We shall see. Even if it is, Susan Pinsky makes it sound like we’re in for another shit sandwich.

To follow what’s going on, you don’t even need to have a Twitter account. Mine is twitter.com/endosucks (or @endosucks if you do have an account). Drew Pinsky is @drdrew, @loveline and @drdrewHLN (yes, he’s on CNN too), though he does also have others (like for the podcast). Susan Pinsky is @firstladyoflove.

If you want to respond, tweet at these accounts, and/or use the trending term #educatedrdrew.

Image

Image

 

And then this treasure happened. Why would Dr. Drew love something sent out by a dietician who specifically deals with IC, a disease he believes has no genuine pathology? HMMMM. My response is below; for some reason, it isn’t showing up on his feed any more.

Patriarchy like whoa.

Image

Image

Follow

Get every new post delivered to your Inbox.

Join 1,634 other followers